Monday, June 16, 2008

MY Heartache

So, I spent all morning on the Internet. I wasn't IM-ing, or checking e-mail or Facebook-ing. I was scouring the world wide web for something new about eczema. That is laughable since I have dealt with eczema on my girls for about 5 1/2 years now. However, it's been a while since I've researched it. And, since new research is being done all the time about everything ELSE, I was holding out for something new. Did I find something? No.

I chuckled when I read "a simple routine of moisturizing will clear up eczema in a matter of days!" I rolled my eyes when I read, "This product will clear up your eczema in 14 days or less." I stared in wonder when I read that red clover, shark cartilage, Crisco, Primrose Oil, Vitamins A, B, and E plus thousands of others are supposed to be good for eczema. Where does one GET shark cartilage?

Last night, I cried as I stared at my TV monitor and watched my baby scratch for more than 2 hours in her sleep. I put 2 different kinds of lotion on her twice, gave her 2 doses of Atarax (a tranquilizer given to sedate people before surgery), and prayed and prayed and prayed. And, I admit asked, "Why?" Is there a point to my child suffering like this? What am I supposed to be learning? Is there any way that God could transfer all her eczema to ME...I could handle it better.

I do everything I can to not have to take my daughter out in public. Why? Because I have to put her in clothes. It's 104 degrees outside, and the only clothes that keep her from clawing herself to death is footy pajamas. She wears gloves 24/7. You can't wear footy pj's and gloves outside when it's 104 degrees.

I can name 10 families off the top of my head that have "normal" children. Why can't my child be normal?

Ok, let me pause hear and say this. I read several blogs about children who are suffering. They have severe health problems, and one family even lost their sweet baby girl because of birth abnormalities. Am I comparing myself to them? No. Will they be offended and think, "Are you kidding me? You're complaining because your daughter has skin problems?" Maybe. Do I apologize and say, "I know my situation isn't as bad as yours."? NO!

I don't apologize for the pain I feel. I don't apologize for wondering why my baby has to bleed and suffer. I don't apologize....but I pray. I pray and ask God to help me find something to relieve her suffering. I pray and ask God to help ME not to ask why, but to trust Him. I pray every day that He will give me mercy and heal my precious baby.

4 comments:

Shannon said...

:( Jenn...if I could drive, I would FIND you just to give you the hugest hug...I know that doesn't help too much, though. Please know you aren't alone in your prayers for healing or at least for answers. I love you and your sweet family, and I'm always available for venting to even if I don't have much else to offer. :)

Tracy said...

Oh Jennifer,

It is torture to watch your little ones suffer. Hang in there. I'm praying for both of you.

Love you, Tracy

melanie21 said...

Your poor babies! At least they have a mommy that cares enough to do what she can. You're doing a great job!

Unknown said...

Hey, it's okay. I just wanted to let you know that I had extreme eczema like Savannah, and eventually she will grow out of it. Also I think it's where you guys live. The climate affects and mine always flares up in hot sweaty weather. I think you need to move :) Just be patient. It does get better